Dear Baby Jayla,
You look so peaceful sleeping with your tummy pressed against mine. My hair is wrapped so perfectly around your hand several times. Your head is gently nestled in the bend of my arm. Your feet are stretched out barely touching your big brother’s arm. The stillness seems so perfect as this night lingers on.
As I listen to you take each sweet breath, I can’t help but wonder what will happen next. I know more sticks and needles are what your future holds. But as much as I try to worry, I know it’s not what’s best! God has willingly taken over so I can get a little rest. He knows what you need so much more than your Daddy and me. He has given us so much peace.
Just two short weeks ago, I prayed the abnormal test results were not so. I remember thinking the odds of a genetic disorder are way too low. Together we have jumped so many hurdles and each has been a blessing, not a curse. They have caused more kisses, snuggles, and prayers as you already know.
So when a new hurdle came your way today, your siblings and I knelt over you and prayed. For we know that your Heavenly Father is the one who heals sweet babies just like you. And, until He gives us the answers, we will continue to jump hurdles for you. Because you are our precious baby who has already come so far. We won’t ever give up for He has placed you so deeply in our hearts.
6 Be careful for nothing; but in every thing by prayer and supplication with thanksgiving let your requests be made known unto God.
7 And the peace of God, which passeth all understanding, shall keep your hearts and minds through Christ Jesus.
As many of you may know, our sweet Baby Jayla has had several abnormal newborn screenings. We are unsure of what the results mean at this time because further blood tests are needed. However, today we did find out that there is actually a possibility that she may have a rare genetic disorder that we were warned about after her second screening. If she does have the type of disorder that is showing up, it may have already caused irreversible damage and other health problems will most likely arise. Please pray that her newborn screenings are actually false positives. This has been the prayer that I have prayed for two weeks now, and it is the one that I am clinging to for now. As her mommy, it is hard not to worry about her. But, I know that is not what God wants. I felt a lot of peace after her last test, and I just knew the results I received today would be different. But, God has a plan for her, and I have to trust He knows what is best! Thanks so much for your prayers. Her doctor is consulting UVA tomorrow, so I will update everyone as soon as I get a better understanding of what lies ahead. The only thing that I do know right now is that further blood testing is inevitable, but I will say that deep down in my heart, I feel like she is a perfectly healthy six month old. And, we love her so much!